Huntington's

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HUNTINGTON'S DEMENTIA

HUNTINGTON'S WEB LOGS (BLOGS)

Huntington's Disease

Societies & Associations

North America

Huntington's Disease Society of America

The Huntington's Disease Society of America (HDSA) is dedicated to finding a cure

for Huntington's Disease (HD) while providing support and services for those living

with HD and their families. HDSA promotes and supports both clinical and basic HD

research, aids families in coping with the multi-faceted problems presented by HD

and educates the families, the public and health care professionals about

Huntington's Disease. Our HD families give a face to Huntington's Disease; HDSA is

its voice.

? Arizona

? California, Greater Los Angeles

? California, Northern

? California, San Diego

? Colorado

? Georgia

? Illinois

? Indiana

? Massachusetts

? Michigan, Central

? Michigan, Northwest

? Minnesota

? New Jersey

? New York, Upstate

? Northwest U.S.

? Ohio, Central

? Ohio, Northeast

? Oklahoma

? Pennsylvania, Western

? Texas

The Hereditary Disease Foundation

This is the wonderful web site of a foundation dedicated to curing Huntington's

Disease. You can find a description of the protocols involved in testing for those

at risk and not symptomatic. Research news can be found here. For those

interested in the scientific details of the ongoing research, go to the section

"Recommended Reading" and click on workshop reports.

Stanford HOPES

Huntington Study Group

The Huntington Study Group (HSG) is a non-profit group of physicians and other

health care providers from medical centers in the U.S., Canada, Europe and

Australia, experienced in the care of Huntington patients and dedicated to

clinical research of Huntington's disease.

HD Lighthouse

Huntington's Disease Advocacy Center

Huntington Disease Forum

Cure HD

HDSA National Youth Alliance

The National Youth Association is for people ages thirty and under with

Huntington's disease in their lives. This could be a pHD (person with HD),

somebody at risk, a caregiver, a friend, etc. We are here to support each other,

and fight to be the first generation WITHOUT Huntington's.

Huntington's Disease Association - Canada

The Huntington Society of Canada (HSC) is a national network of volunteers

and professionals. Together, we're working to build a brighter tomorrow for

everyone whose life is touched by HD.

International

International Huntington Association

The International Huntington Association (IHA) is a federation of national

voluntary health agencies that share common concern for individuals with

Huntington's Disease (HD) and their families.

Countries Alphabetical

Argentina: Asociacion Argentina de Huntington

Translation: We are a group of people (patients, family members and

doctors) affected by HD. We live in Argentina. Our aim is to help us each

other live with the disease as better as possible and to stimulate research so

that we can find the desired cure.

Australia: Australian Huntington's Disease Association (Victoria)

AHDA (Vic) provides a comprehensive range of support services to any

person affected in any way by Huntington's disease.

Australian Huntington Disease Association (WA) Inc.

Australian Huntington's Disease Association (QLD)

Austria: Chorea Huntington

Belgium: Ligue Huntington Francophone Belge (LHFB)

A French language Belgian HD Web Site. C est merveilleux!

French: L'association HUNTINGTON Provence Alpes C�te d'Azur / Corse

L'association HUNTINGTON Provence Alpes C�te d'Azur / Corse a �t�

cr��e, en septembre 2002, pour r�pondre � un besoin de proximit� des

malades et de leurs familles de notre r�gion aux fins de les recenser, de

leur faire savoir qu'ils ne sont pas seuls et de les soutenir.

Germany:German Huntington Help

Great Britain: Huntington's Disease Association - United Kingdom

HDA Online is the Web site of the UK's Huntington's Disease

Association, which offers news and information about Huntington's

Disease for people affected, their families & friends and health care

professionals.

Huntington's Disease Association (West Lancashire)

This is the Web site of the North West Lancashire branch of the

Huntington's Disease Association.

Ireland: Huntington's Disease Association of Ireland

HDAI provides consultation, information and individualized support to those

diagnosed with Huntington's disease, their families and their health care

team.

Northern Ireland HD

This site is dedicated to Northern Ireland's Huntingdon's Disease sufferers,

their family and friends and anybody else who has an interest in HD.

Italy: Associazione Italiana Corea di Huntington

This is the site of the Italian Huntington's Disease Association. It helps those

with HD and their caregivers.

Rome Association:

(In Itallian) Hint: copy URL to Google then select this page

Facing Huntington disease - tradotto in italiano come "Affrontare la Corea"

Japan: Japan's Huntington's Disease Network

JHDN's primary goals is to provide and share information on the latest

researches and resources on HD, through the internet activities.

New Zealand: Huntington's Disease Association of New Zealand

The 3 Associations were established around 1980 by families who were

frustrated by the lack of services and who felt isolated. Unable to support a

national organisation the 3 Associations function separately to meet the

needs of their members, but co-operate when it is appropriate. [speakers

from overseas, Awareness Weeks, conferences and this Web Site]

Scotland: Scottish Huntington's Association

The S.H.A. is the National Voluntary Organisation which offers information

and support to families with HD, their friends and professionals, through a

network of local S.H.A. groups and professional staff acting as Huntington's

Advisors in various parts of Scotland

South Africa: Welcome to the Huntingtons Disease Home Page - South Africa

Spain: Corea de Huntington

Research the Disease Yourself

Hardin Meta Directory

The Hardin Meta Directory (Hardin MD) has been a popular health portal site for

several years, whose purpose is to provide access to the best lists of Internet

sources in health and medicine; we were recently cited in a US News article on

"Best of the Web: Health.

HealthLink

This site provides valuable information about hundreds of disease. This is a direct

link to their page on Huntington's Disease.

MEDLINE Plus

MEDLINEplus is goldmine of good health information from the world's largest

medical library, the National Library of Medicine. Health professionals and

consumers alike can depend on it for information that is authoritative and up to

date.

Medscape

This link will also automatically submit a query for all pages discussing

Huntington's Disease.

The Merck Manual of Medical Information

No book can replace the expertise and advice of health care practitioners who

have direct contact with a patient. The Merck Manual--Home Edition is not

intended to do so, nor is it meant to be a self-help book. Rather, we hope the

medical information it provides will help readers communicate more effectively

with their health care practitioners and, as a result, understand more

completely their situations and choices. Suggestions for improvements will be

warmly welcomed and carefully considered. - Robert Berkow, M.D., Editor-in-

Chief

PubMed is the National Library of Medicine's search service.

Type in "Huntington Disease" (not Huntington's Disease) to get the latest research

abstracts. You can also type in the generic name for a particular medication and

look at the research on that medication.

RxList.com

This is a nice site for doing quick research on different drugs that you may be

interested in talking to your physician or neurologist about. Keep in mind that Web

information should always be considered less reliable that a one on one discussion

with your physician or pharmacist.

Neuronet

Organizations of Interest

American Academy of Neurology

The American Academy of Neurology is a medical specialty society

established to advance the art and science of neurology, and thereby

promote the best possible care for patients with neurological disorders.

Baltimore Huntington's Disease Center

The Baltimore Huntington's Disease Center is one of the two centers for research in

Huntington's disease supported by the NIH in the United States.

Harvard Brain Tissue Resource Center

The Harvard Brain Tissue Resource Center is a federally funded, non-profit

organization, that serves as a national resource for the collection and distribution of

postmortem brain tissue for medical research into the causes and treatment of

Huntington's Disease and other devastating neurological and psychiatric disorders.

High Q Foundation

High Q is a major player in the world of funding HD Research.

MentalHealth.com

The lofty goal of this site is "to improve understanding, diagnosis, and treatment of

mental illness throughout the world". It's actually a very nice and concise site,

especially in respect to it's discussion of drugs related to mental health.

Caregiving & Support Organizations

Caregivers Zone

CaregiverZone � a comprehensive resource for family caregivers, elder care

professionals, and seniors.

I Care for You

A well developed portal of caregiver resources.

Caring for people with Huntington disease

Advocacy & Awareness

The HD Foundation

The HD Foundation is a worldwide health charity. Consisting of volunteers and

professionals against Huntingtons Disease, an inherited genetic disorder. The HD

Foundation's sole purpose is to raise as many donations as possible for research

and towards finding a cure.

Writerspeaker (Carmen Leal)

Growingwild

Shana Martin

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